Estate Planning Blog Articles

Estate & Business Planning Law Firm Serving the Providence & Cranston, RI Areas

What Should I Know About Parkinson’s Disease?

Parkinson’s disease is a progressive disease of the brain and nervous system that impacts an individual’s ability to move. However, those with the disease can have a range of symptoms, some unrelated to movement. Not everyone with Parkinson’s will have the same symptoms or experience them to the same degree.

VeryWell Health’s recent article, “Researchers Find 2 New Early Signs of Parkinson’s,” notes that common Parkinson’s symptoms include the following:

  • Motor symptoms
  • Muscle stiffness
  • Slowness of movement
  • Tremors
  • Non-Motor Symptoms
  • Constipation
  • Low blood pressure
  • Sexual dysfunction
  • Frequent urination, incontinence, or difficulty emptying the bladder
  • Mood or Cognition Problems
  • Apathy
  • Memory problems
  • Depression, anxiety, and
  • Psychosis.

Other Symptoms include:

  • Drooling
  • Pain
  • Decreased ability to smell
  • Speech problems
  • Changes in vision
  • Sleep problems
  • Excessive daytime sleepiness; and
  • Fatigue.

The timing of when a person starts having symptoms that could be a sign that Parkinson’s can also impact when they will be diagnosed. The new study found that many common symptoms of Parkinson’s—like tremors and memory problems—may appear many years before the diagnosis.

“Tremor, which is one of the most recognizable symptoms of Parkinson’s, was seen ten years before eventual diagnosis in our study,” Cristina Simonet, MD, a neurologist and a PhD candidate at Queen Mary University of London and the lead author of the study, told Verywell. “This is too long for patients to wait.”

Primary care providers play a critical part in recognizing the symptoms of Parkinson’s sooner. If they do, they can refer a patient to a specialist to diagnose or confirm it. There’s no cure for Parkinson’s. However, an earlier diagnosis is the key for ensuring that patients can access support sooner.

Reference: VeryWell Health (March 30, 2022) “Researchers Find 2 New Early Signs of Parkinson’s”

What Should I Know About Advocating for a Loved One with Parkinson’s Disease?

Unfortunately, recent studies have shown that three out of every four hospitalized Parkinson’s Disease patients didn’t get their regular home medications on time or had doses entirely skipped.

Proper medication management is the most critical part of a successful hospitalization for someone with Parkinson’s Disease.

Antiparkinsonian medications (levodopa or amantadine, for example) must be given correctly, at the right time and in the correct dose.

If regular home medications aren’t provided in the hospital, Parkinson’s Disease patients can develop mental disturbances, increased muscle rigidity, tremors and difficulty communicating. As a caretaker, you have a vital role in helping the transition from home to the hospital run smoothly.

Next Avenue’s recent article, “How to Advocate for Your Hospitalized Loved One with Parkinson’s Disease,” has some ways you can do this.

Make sure you have an up-to-date list of medications your loved one takes. The list should include the name, dose, when it was last taken and what pharmacy is used for prescriptions. Be prepared to give this to the hospital staff when requested.

You should also list drug or food allergies, including reactions. For example, did a particular drug cause severe irritability or a rash in the past?

It is important to remain with your loved one when they arrive at the hospital until the first dose of their regular medication is administered. Note that a first dose can usually be delayed by several hours if the nurse needs to input the medication list into the chart immediately or if the hospital pharmacy is delayed in verifying the orders. However, after the first dose, future quantities will likely be on schedule.

Cooperate with nursing staff to make sure that your loved one is comfortable. Be direct, yet kind, in asking when the patient might need personal hygiene supplies, a quieter environment, or on-time medication.

As a caretaker, your education and experience regarding Parkinson’s Disease are powerful tools.

Some things might fall through the cracks in a busy hospital– and you know the patient best. So don’t be afraid to speak up and express your needs as you advocate for your loved one.

Reference: Next Avenue (December 22, 2023) “How to Advocate for Your Hospitalized Loved One with Parkinson’s Disease”

Search
Join Our eNewsletter

Recent Posts
Categories